Dr Visit today

Emma went to see Dr Wright today, he is the one who does her botox. He is going to try her on a medicine to see if we can reduce her drooling, we actually have to get a call into them again, because the prescription they gave me can't be filled the way its written.

He also said that he is going to do botox in her hips again and in her finger flexers so hopefully we can get those hands to open up! YOOPIE! I really hope that works, it will be nice to see Emma more relaxed, she always looks like she is ready to get into a fight with her fists all tight like that. We go in on June 18 for the botox.

We also talked to the nuerologist (brain doctor) because Emma is starting to do her little jerks again. They are called myoclonic jerks or spasms, they are not seizures but are quick little "Startle like" jumps. We go see Dr Parke for that on Thur afternoon, after physical therapy. I am shocked they got us in so quickly, we got an emergency appointment, I am sure all they will do is up her Zonegran pills, those have been a cure for the jerks in the past.

That is all to update for now, I will write more when I have more news to share.