Wednesday, October 16, 2013

Yep we are bad about updating ,but I couldn't let today go by without saying HAPPY 9th BIRTHDAY EMMA AND ELLA!!!!

Wednesday, August 21, 2013

First day of school!

Derek and Ella made it off to 3rd and 6th grade. Emma is starting 3rd grade at home and also remembering her friend Olivia who died one year ago today, please pray for Livi's family. All is going great
here, I promise to try to update more. Make sure you check out Emma's facebook page too, I post their fairly often

Tuesday, May 14, 2013

It's a go! Our friend Tricia is currently on her way to the OR for her lung transplant. Please pray for the donor's family and pray that the surgery goes well.

Sunday, April 07, 2013

What's the point of curly hair?

Just a quick update to tell everyone Emma's medi monster has a name. It is Plankie. We called Ella who as at Nanny's hose to help us with a name, she suggested Plankton because the one on Spongebob only has one eye like the little monster does. We thought maybe something more cute and girly would be better so Plankie it is.

All is good today, storms possible in the next few days, even a chance of tornadoes so we are packing medical equipment in an emergency bag in case we have to go for cover in the next few days. Bike helmets and shoes all lined up and waiting for us back in our back bathroom as well. Praying we don't see anything too bad, after the tornado on the ground in Norman that missed us last year, we try to be pretty prepared just in case, that one sure caught us off guard.

Wishing everyone a very happy Sunday.

Saturday, April 06, 2013


Today Emma got her free Medi Monster in the mail. Its from an amazing lady who takes it all on herself to make these little stuffed creatures for kids who under medical procedures and have special needs. The link to her website is. Medi-Monsters


For those on facebook Emma now has her own "like" page. Go like it! Emma's Journey on Facebook

Monday, March 25, 2013

All Nurses go to Heaven.

Today would have been Emma's home health nurse  (very first one we ever had!) DeLene's birthday. But she is in Heaven where you never get older. Its been 8 months and sometimes the pain feels like it was yesterday. She is forever our friend, watching over us now from Heaven, and forever the best nurse we ever had or will have. Please pray for her family today! Thank you

Monday, March 11, 2013

Stop using hateful words

I have recently been in some pretty heated conversations about the use of the word retard. I won't get into a big long rant here except to ask people to please stop using it in a derogatory manner. Don't call a person that. Its not a joke, and its not an acceptable medical term. Remember its not about being politically correct, its about being considerate of other people's feelings.

Learn more here:

Pretty in Purple

 Not much to update, Emma's doing great. Just hanging out enjoying life. Did want to share her pictures though, she is getting taller I think! Also still asking for prayers for our friend Tricia who has not been able to be added back to the wait list to get new lungs yet, praying that happens soon.

Monday, February 11, 2013

Feeding tube awareness

It is feeding tube awareness week and Emma's sporting the cutest little mickey button in town.

Sunday, January 20, 2013

Acceptance is an Empowered movement that Educates others to Embrace diversity and Love life by seeing beyond abilities.  
Friends, tell the world you embrace who you are; a person with social rights, who has an opinion, who has interests, who has goals and who loves life; a person who is empowered to make a difference in the world and not be without a voice in society. You are not living disabled, you are living.
To our supporters, join us in telling the world that you are accepting of people with disabilities. As our parents, siblings, relatives, spouses, children, lovers, coworkers, teachers, personal assistants, friends, and anyone else - you also have a role in our culture and life. And you can have an impact on the future if you demonstrate your acceptance to others.
Let's join together to:
Embrace diversity. Educate your community. Empower each other. Love life.

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