Emma's Journey

Here is an update for everyone. Emma went to thearpy today. She did pretty good. She really worked on sitting up with some help and even lifted her head up staight a few times. I was very proud of her. I told her she looked like her sissy Ella when she set up like that.

Amy pointed out to me today that Emma is getting a slight curve to her spine, which is very common in kids like Emma who aren't really active and spend a lot of time in chairs and beds. Its still not a GOOD thing though. We will keep an eye on it, its pretty slight right now and we will bring it to her doctors attention and see what he wants to do about it, probably noting for now but just to watch it. Later on if it gets worse (which those things tend to do) we can brace her or possible do surgery. Having a big curve in your spine can actually be really bad, and put pressure on your lungs and it can be very serious if not deadly. But were aren't there yet so don't worry. We have lots of options if it starts getting worse.

We are working on getting her a brace for her hips because her legs are so frogged legged that she can barely fit in her bed anymore and getting her in clothes or in the bathtub is a nightmare. We won't see Amy in 2 weeks because of thanksgiving but when we do go back we will get the ball rolling. She has great range compared to what she used to have, you can really move her legs much better, thank God for that because it is a bit easier to dress her than it used to be. But her hips are weak and they don't want to stay together. Hopefully a brace will help.

Gosh I can't believe its almost Thanksgiving! We are also going to do some splints/braces for her ankles. Her right one tends to make her foot stick out at an angle, and the left one is fairly weak too so I hope we can get something to work for that.

It is a very pretty day outside and Emma liked the sunshine on her face. She sucked on a red dum dum lollipop today at therapy, well she didn't really suck but she tasted. I put it in her mouth and left it sticking out and one of the ladies at therapy said "Kids arent supposed to walk around with those in their mouth" and I told her "Well Emma isn't walking she is rolling! Besides she can't choke like most kids she has a trach!"