Physical Therapy

Physical Therapy

Emma did well yesterday at therapy. Her therapist Amy is still so amazed at how well Emma's legs are doing since the botox. Shhh don't tell Amy but Emma and I have been working her legs lots and lots just to surprise her. Actually Emma has been doing all the hard work, Mommy just helps. She had a great work out yesterday.

She had hand splint made to keep her hands open, it took longer than they thought so we get the other hand done next week. Maria made her hand splints, Emma likes her but decided to roll her eyes at her a few times think she was thinking 'Come on already lady where are my splints!" it was cute.

Our friend Joel has gone to Heaven

A few posts back I told everyone to check out Joel's blog at http://weloveyoujoel.blogspot.com/index.html. Well Sweet little Joel passed away this afternoon. He was a fighter and was a sweet little angel from what I had read. It makes us remember our online friend Oliva that died this summer. It just seems to unfair that another innocent child has been lost, but I know God's will was done and that we should not question the Lord. Please continue to pray for Joel's family. They will need strength in the days to come

Here a sick kid, there a sick kid, everywhere a sick kid!

Emma is feeling better today, she has managed to stay yucky diaper free all last night and today. She is resting now and has been sleeping a lot but seems much happier today.

Ella is still feeling yucky too but is improving, she has a little cough and is sleepy but she is also jumping all over the house so I guess that means she is better.

Poor little Derek. He is still pretty sick. We took him to the doctor today because on top of the tummy thing he has a cough and his ear hurt. He has a double ear infection. Yes, that is 3 since September that he has had, for those of you keeping track. They called in some good medicine for him so hopefully he will be up and running soon. He missed 3 days of school last week, and Monday was a holiday. The school was closed for ice today and I am hoping it will be tomorrow too so we don't have to call him in again. He wants to go back to school bad, but I want to make sure he is better, the schools rules say you have to take your antibiotics for 24 hours first so we will see.

I am tired, on top of all this Emma's nurse DeLene has the stomach bug and was gone last night and will be sick tonight too, no replacement is available. We have no nurses on Wed night so I guess I will be on the couch 2 more nights. How fun is that?

I will keep everyone updated as to how our little squirts are doing.

Christmas Photos

Derek showing off his card
from Nanny and Poppy

Emma at the JD McCarty Center

Poppy and Ella

Daddy and Mommy

My new favorite picture

of Emma

Ella and an "OH HO" her word

for snowman.

Emma Ella and Derek

with the cards they got

Prayers for a friend

There is a family who really needs prayers. Everyone please check out their blog. http://weloveyoujoel.blogspot.com/index.html. His name is Joel and he is 3 and is so adorable. He is at Children's hospital in Oklahoma City. His story is amazing and he is in desperate need so everyone please pray for our "friend" Joel.

Long awaited update..

Sorry I haven't written in a while but we have been busy with life. Christmas went really well. Emma got lots of presents from Santa because she was a very good girl this year. Her favorite thing is her fish aquarium toy that lights up and sings that her Grandmother gave her. She loves to watch it, and will "cry" in her Emma squeaky language if she wants it turned on again when it stops.

Derek and Ella have both had the stomach bug for a week or so off and on. Derek missed 3 days of school last week. Ella is very grumpy and she has learned that when you throw up you have to put your head in the trash can Mommy has waiting. She does ok with it.

Last night Emma's nurse said Emma had diarrhea 2 times last night (I hope that is not to much information!) so I am hoping she isn't getting sick. She has no fever and is acting ok so maybe its just a fluke thing. Its not uncommon for her to occasionally get diarrhea.

We had an ice storm come in over the weekend. Its very cold and I don't think its is supposed to warm above freezing until Thur or Friday. We have therapy with Amy on Thur so I guess we will have to bundle up good.

Update Dec. 21, 2006

Emma went to therapy today. She well. It was nice for her to get to see Amy before Christmas. Emma got to see all the decorations out at the JD McCarty center again, she really liked that. I think she likes all the Christmas trees the best or the big Santa Claus out front.

We also got the base to her carseat delievered today. Actual its more than a car seat, its a "positioning system". So with this base it turns it into a chair with wheels she can sit in, inside the house. I haven't put her in it yet, want to wait until either the nurse is here or Dad is here to help me the first time, have to figure where to put her vent and what not. It will probably go on the new cart she has that holds her things.

Merry Christmas everyone. Please try to check back often, I plan on posting a few more times before Christmas since brother is out of school and we will be up to a lot with Emma.

Thanks!!!!!

Therapy today

Emma did pretty good today at therapy. Her Nanny and Poppy came and took lots of pictures, including pictures of her chair that Mommy decorated (you cant tell but the lights on her chair were lit up!) She had a spell when she wanted to use oxygen for a while but about half way through therapy decided enough was enough with the oxygen and started to breath better. Nothing to worry about, she is acting very healthy.

Amy think the botox worked great, she was very impressed with the way Emma's legs and hips were working. So that is a load off, I wasnt sure if it had been a success or not, but Amy's input is greatly appreciated and respected.

I am posting a slide show with music of the pictures we took today. I hope you like them. Thanks to Nanny and Poppy for taking them! I really think her Poppy was happy to get out there finally and see how great the center is and how great Emma does. Nanny was glad to have a repeat visit out there.

God Bless you all, I will have more updates very soon.

Special Message for Emma's Therapist Amy

Emma wants to put out a special message for her physical therapist Amy! CONGRATULATIONS ON YOUR ENGAGEMENT!!! Amy will be married June 2 if all goes as planned. Her ring is so pretty and Emma sure was eyeing the sparkles it made. Congratulations Amy, you deserve much happiness.

Somethning new to update!

Sorry I havent updated in so long, things have been kind of busy with the holidays. But guess what??? Emma has learned something new! When she is sitting/laying on the couch she has started to lift her head up and look around! She can get her head up about 2 inches or so off the couch. She loves being down at Ella's level and near the tv. She is a sweetie. I am so happy that she is working her head so well!

She has been such a good girl this year I bet she will get so many presents from Santa. We have missed PT due to a few things the last 4 weeks or so but go back to see Amy on Thur. Emma has missed her so much.

So far so good

Emma is still pain free and happy over her botox! I have not noticed any major change yet but havent done her streching yet today, so we will see in a while what is going on with her. I honestly dont know why some people make sure a big deal about botox. Emma has had no pain, no issues, no crying at all. I guess it is just diffrent for everyone.

Ella is coming home today from her Nanny's. She calls Nanny "Jean" and she says "football" she fed some goats the other day and called them "Puppy!" she thinks anything furry is a dog. Emma is excited to get her sister home.

Botox

Emma did pretty today with her botox. They started an iv to give her the sleepy medicine before hand, and they had told me the nasal drug would work. But they tried the iv and missed in her hand and it swelled up. Then tried her foot and got a good vein. She slept good and woke up with a few small holes poked him her back from the needles but other than that seems pretty normal. She is sleeping now, and is still a little loopie from her medicine. We arent really supposed to do any heavy stretching today but in a few days hope to see good results! WAY TO GO EMMA!! I was so proud of her today

More shots!!???

Botox time. Tomorrow morning Emma will get her first round in her abductors and her hamstrings. I pray all goes well. She isnt very nervous but Mommy sure is. I really hope we see the results we are praying for. She really needs it to work so we can get her hips in and and get her weight bearing and get her to walk eventually with any luck! They will do it on her arms later. Please think of Emma tomorrow. I will update when we get home.

Flu shot time

Emma, Ella and Derek all got checkups and flu shots yesterday. Emma and Ella also got the Hep A shots. They all did wonderfully only crying for a few seconds, except Emma who didn't cry at all. She is my brave girl.

Here is the info on how big all 3 kids are in case you are wondering.

Derek is 48 lbs and 46 1/2 inches tall
Emma is 28 lbs and 32 inches tall
Ella is 23 lbs and 36 inches tall

The doctor said all looks good for Emma. Gave her a new cream to try on her face called Hylira, not sure if we are going to have it covered by insurance but they think that it is.

Emma also went to phyiscal therapy yesterday. They gave her new dinasplints for her legs. We are hoping that after next weeks botox shots she will really respond well to the splint use. She does ok with it now but botox is sure to help.

Thats all the update for now. Love to everyone

You give me fever....

Emma had a fever last night of 102. Poor kiddo. She isnt acting all that sick anymore but apparently she still is. Our night nurse woke me up and I gave her something for it and she went back to sleep and cooled down.

I hope she gets well soon. They are going to attempt to give all the kids flu shots on the 9th IF the shots are in and if Emma is running a fever they won't give her hers.

The rash on her face she has had for months is looking better. I have been putting lots and lots of oil of olay on it. I am almost 100% its eczema. I will ask the doctor about it on the 9th.

Thanks for checking our blog, I will update again soon

Icky Sicky Germs

Emma missed Physical Therapy today. She has the sick germ we have all been fighting with for the last two weeks or so. We have all had colds. Ella and Emma both had fever this morning. So far Emma is only a bit more gunky nothing too bad and has the fever. She has only needed oxygen for a few mins here and there and not any in the last 2 days. I am hoping she doesnt end up sicker and have to go to the hospital. I am sure she will be fine though.

Halloween went well. The kids got lots of candy! They want it for breakfast, lunch and dinner and I am always hiding the box. Derek was superman. Ella was a pretty devil and Emma went as an angel. We went out to about 2 blocks and ended up coming home becasue it was so cold. Emma slept though the whole thing! We didnt want to stay out too long since the girls were feeling icky and we all had runny noses!

That is the quick update for now, I will keep you up to date on how we are all feeling.

Party Pics

I posted a small slide show at the top of the blog so show you pictures from the big birthday party on Oct 7th that Emma, Ella, and Derek had. I hope you like it!

Happy B-day

Happy Birthday Emma and Ella!!! You turn 2 today!!

A big update

Lots to share, as I havent written in ages. First and foremost I should let everyone know that on Nov 17th Emma will be getting botox done in her hip area and possibly her hamstring area. So keep her in your prayers and I will of course let everyone know how it goes. Also Emma had her birthday party last weekend! Yoopie! She got lots of presents and I will post some pics here in just a min. She has her 2 year old checkup on the 23rd of Oct. She will be getting her shots. Poor kid. She is doing great. I will update a little more when I get a chance. Its dinner time

Went to lung doc today

Emma went to see Dr Royall today, for follow up from when she was sick in August. He said she looks ok on the chest xray. He said her last blood work showed that her Carbon Dix. levels were too low so he changed her vent settings some. It used to breath for her every 24 times a min and now its only 22 times. Its hot at our house, our air conditioner is broken again. It should be fixed soon. Emma's Nanny is coming over with her great uncle Jerry and great Aunt Linda. They are visiting from San Antonio Texas. They will be here any min. I will update later tonight or tomorrow how their visit went. Just wanted to post a quick something about seeing the doctor.